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Myeloma Mushrooms?

Part of my Car-T prep was to have an echocardiogram to check out my heart. The test showed I was mostly fine except for a potential problem with one of my valves.

This was a new problem from either the high dose melphalan or more likely from the carfilzomib, since that is known for beating up hearts.

Anyhow, they wanted me to have an MRI of my chest to further investigate my heart. I got the result back last night. I showed that my heart is perfectly fine (thank goodness).

“Grossly unremarkable”

That was the term they used, which is actually pretty funny.

I turned to my wife and told her, “I love you with all of my grossly unremarkable heart”.

We had a chuckle and I kept reading the report.

“An osseous lesion noted within the midthoracic spine, incompletely evaluated on this study”.

Son of a gun!!! Where the heck did that thing come from. I just had a pet scan a few weeks previously, and it didn’t show anything!

This was an (unexpected) blow to me. I haven’t had a lesion since more than 5 years ago, when I was first diagnosed. Now I have a little bugger popping up it’s head in my spine!? The ups and downs of myeloma 🤦🏻.

I needed to reset my head. I went and had a shower and then went outside and did some Qigong and meditation. Qigong and meditation are my go to for (re) leveling my head.

I’m still working out the last dredges of it from my system today.

I was cutting up some mushrooms for my lunch today. The thought popped into my head, that myeloma is a lot like mushrooms. Myeloma percolates in a person’s marrow, just like mycelium in logs for mushrooms. Then all of a sudden, when conditions are just right, a lesion seems to pop up, just like a mushroom after a rain!

Grrr….. I don’t know what the doctor is going to recommend yet. Radiation, chemo, leave it be? I still have 3-5 weeks until my engineered cells come back.

I’ll just keep walking, moving forward…

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