“I Don’t Know”

Wow, it’s been about a week since I wrote something. I feel like sleeping most of the time. I was warned about the extreme fatigue that comes with this, but this is a whole other level compared to other fatigue I’ve gone through.

I ended up getting the boot from the hospital a few hours after I wrote my last post. The doctor came in and did a complete 180 from what he said the day before. I think when it came down to it, they needed the room for someone else, and me staying was messing up someone’s schedule. The early test results said I didn’t have an infection, which was confirmed days later. My fever was caused by the CRS.

When they decided to give me the boot from the hospital, I mean they really did give me the boot. They pulled out my picc line, gave me a shot of Neupogen to boost my white blood cells, and had a wheelchair ride to the curb waiting. The doctor said a nurse practitioner was going to come by and answer all my questions, but one wasn’t available, so that didn’t happen. I was a bit ticked off with the lack of information as I was suddenly being shown the door. Overall the hospital stay and staff were good, except for the end.

I didn’t mind going home, as a hospital is not a place of rest or recovery. It’s a place to make sure you don’t die, although that happened quite a bit while I was there. 4 people dying in one day was my record while I was there.

I was talking with one of the nurses while I was there, and he was wishing they didn’t announce it on a loudspeaker on all floors. He found it disturbing and he wasn’t the one hospitalized. I didn’t mind knowing. It was a good reminder that death is part of life and it happens all the time, unknowingly to most people.

So I’ve been home for about a week now. I’ve been pouring in the nutrition, giving my body what it needs to recover. I had a check up on Monday, with labs showing my recovery. I have another check tomorrow, where I think we will run some myeloma labs, to start seeing how the treatment is going.

I’ve had two little bouts of confusion when I wake up in the middle of the night. I’m also having some weird nerve discomfort/pain down the backs of my arms and legs. That’s going in the “I don’t know” category for the doctors, but fortunately it is gradually getting better on its own.

I think that’s it for now.