Well, I got through another month and a half of my blood not trying to kill me, so I’m quite pleased about that. I’m starting to get cautiously hopeful. My specialist reminded me the other day that 30% of people who have car-t are cured. But the unspoken math says 70% aren’t. That would really be something to permanently survive myeloma.
My IGG is back to normal, which makes me feel some semblance of normal as far as energy and ability. When I was down in the lower 400s, I was really dragging, and I was getting sick frequently. I don’t know what my IGM or IGA are because my doctor doesn’t like to have them tested. IGA is the important one for this time of year, being cold and flu season, and that’s what those antibodies main job are.
I’m unsure at this point whether I can maintain my IGG level on my own or if I’ll start dropping again. The car-t really destroyed my IG levels as well as the cancer, so my antibody production ability is still unknown. The doctor stopped my IGG infusions, and we will wait and see at the next round of blood tests if I can hold it.
Carrots Over Cancer 