Blog

Do You Want to Live?

Do you want to live? I feel, fundamentally, it is the most important question you need to ask yourself when you have cancer. It takes some deep thought though and probably some intuitive feeling. 

Most people will say, “duh”, of course I want to live. The answer to the question is more complex, though. I’ve certainly come across people who say they are ready to die, but actually want to live, and also people who say they want to live, but would rather die.

If you say “no”, maybe you have had a long, happy life and feel like you accomplished what you wanted to. Maybe another person could just be tired of it all and this is your ticket out of here. 

You need to have a conversation with your inner self and see why it’s “no” to make sure it’s the right choice. No judgement from me, but you may receive some from family members, which is why you need to actually KNOW.

There are usually not any take backs if you decide you’re done. Your body will usually comply within a short amount of time. This why it’s so important to be at peace with a decision like this.

If you say “yes”, and most people will, what does “yes” actually mean? For most people facing cancer, especially those with cancers without a cure, you are in for the challenge of your life.

Does “yes” mean, I want to live as long as I can eat burgers, pizza, alcohol, fast food, soda and sugary treats? 

Does “yes” mean, I want to live as long as I can sit around looking at my phone or TV for most of the day?

Do “yes” mean, I want to live as long as the chemo, radiation, surgery take care of it and I keep living my life the way I’m living?

Does “yes” mean I will cut out the toxic nature of my lifestyle, products and people?

Do I want to live if I can no longer walk? Do I want to live if I’m missing some body part that affects other things in my body?

Does “yes” mean, I will do what ever it takes to keep living?

You need to identify the things in your life to KNOW why you want to live. You have to hold onto those things to be able to overcome the things that decrease your odds of living. 

Would I rather be at many of my children’s birthday parties, or would I rather be eating the cake at a few? (A bit of a silly example, sugar is a much more complicated topic that deserves its own post. Eating a bit of cake a few times a year probably won’t hurt).

It takes willpower, sometimes a significant amount, to overcome doing what is easy, to do what increases your odds.

Cancer was not caused by accident. Cancer is an immensely complicated condition which was caused by numerous things thrown into your pot and mixed together, and it’s different for everyone.

If the 5-year survival rate for a cancer is 40%, would you rather be on the side of the 40% that is living or the 60% that passed away?

Certainly, there are no guarantees. I do believe though, with the right diet, exercise, detoxing of your body, mind and home, everyone can at the very least increase their health and lifespan.

I chose to live. I chose to do whatever I could do to increase my odds. I wanted to defy the odds. I wanted to be on the percentage side of the people who are still alive.

Sometimes when I have a spare moment, a scenario will run in my head of x, y, or z  happening to me. I ask myself if I still want to live if x, y or z happen to me. For the most part, the answer is “yes”.

When I’m having a rough day or a rough time of things (usually around treatment), I remember why I want to live, and I repeat to myself: I want to live, I want to live.

I chose to live. I chose to surround myself with life. I chose love and happiness. My choices matter.

What do you choose to do with what time you have, whether that is short or long? What is important to you?

Do you want to live?

Blog

The First Post

Well, where to start? My name is Jothi (pronounced Joe-T). I’m married for 20+ years at this point, and we have 4 children aged 12-19. I am a big nature person. I love spending time outdoors, gardening, hiking, going to the beach, exploring. I am also a huge gamer. Games of any type, board games, sports (both playing and watching) and occasional video games.

People who I would like to sit down and have a long conversation with are in no particular order: Dalai Lama, Barack Obama, Warren Buffett, Anita Moorjani, Neil McKinney, Shin Terayama, Ryan Reynolds, Michael Jordan, John Stewart, Helen Jane Long and Steve Kerr.

For my myeloma family out there, I have Lambda Light chain myeloma. Which means I have too many lambda light chains that make up my blood for everyone else. I have the 14;16 translocation in my myeloma genetics, which basically means my myeloma is smarter than standard myeloma and is good at side stepping drugs.

I had 2 lesions when I was diagnosed, one on my 7 rib on my right side and a bigger one on the right side of my sacrum. Sometimes, I think about tumor placement in the body, and while there are worse spots than the sacrum, the sacrum is a terrible spot to have a tumor! I don’t recommend it. That’s the spot where your spinal cord fans out in a fantastic web of nerves. To this day, it’s like a little bird sitting on my shoulder poking me, saying, cancer, cancer, cancer.

I have had radiation on my sacrum and I went through the VRD chemo protocol (Velcade, Dex and revlimid). I elected not to do the stem cell transplant at that time. My lambda light chains at the high point were 470 and my Kapp/Lamb Fr was .01. M-band was 1.4.

About a month ago I started on Dara sq, Pom and Dex. As of last blood draw, my Lambda light chains are 142.52 Kappa Light chains 5.70 and KAPP/LAMB FR is .04. My M-band is 1.4. These numbers are after being off of all Chemo for over 6 months after I had a go with covid and saw that the chemo wasn’t doing anything anyhow.

I’ve had 2 pet scans this year, with the most recent in July. Both have come back showing no cancer activity.

I have become very passionate of diet, nutrition and what actual food is along my brief journey. When I was struggling for a website name, my kids suggested: Eatyourvegetablesdotcom, but it was already taken. But it is definitely my motto.

That’s the gritty numbers post with the information download. I hope my future posts will be a bit more fun and entertaining.

EAT YOUR VEGETABLES!!!