Blog, Nutrition

My Stem Cell Transplant Strategy

I had a simple strategy for my stem cell transplant. I thought about the procedure for a little while, and this is what made sense to me. For me, it’s all about increasing odds and outcomes. I viewed this transplant as a major ordeal for the body. You wouldn’t get off your sofa and do a decathlon! Why would it make sense to get off your sofa and do a transplant? I went into transplant training.

The procedure in its essence is killing off your bone marrow and therefore your blood as well. Trying to wipe the slate clean. It is regrown from stem cells that were collected from yourself previously.

My step one, thinking about it logically, I wanted to have the highest quality possible of stem cells that were going to be collected. After all, this little bag of stem cells is what was going to regrown all my marrow.

I’m a huge plant person. Growing plants isn’t complicated. Give them the nutrients, light and water they need in the right amount and they thrive. Humans aren’t much different.

I wanted to spam myself with nutrition. I tend to do that all the time, but I made an extra effort. Your food is your cell’s building blocks. Healthy grains, berries, a rainbow of vegetables, lentils, healthy proteins and oils. Diversity is the key.

(👈🏼 Bitter melon is great for detoxing your liver, yes, it’s very bitter).

Second, I wanted to detox my body as much as I could, from all the chemo and drugs I had done. I mainly did this using a little personal infrared sauna. I sat in the sauna daily at 170 degrees and let my body sweat out the junk it could. Besides the big nutritional benefit of fresh vegetable juice, it also detoxes your organs, particularly the kidneys, liver and intestines.

Thirdly, I increased my exercise regiment. Walking, running, weight lifting and exercise biking. I also made it a priority to go hiking for miles, as much as I had time for. Sweating and heavy breathing, helped detox. Increased breathing, increased oxygen for my cells. Plus, hiking in nature helped my mental facilities and forest bathing can have a positive effect on cells.

Fourthly, I needed to work on my mental game. I increased my breathing, meditation and Qi gong. I felt it was important to have a level calm head, so I could overcome the mental lows that I knew were coming up. I went over breathing techniques in my How to stop freaking out post.

Meditation is the best way to keep control of your mind. Early in my cancer journey, for some reason, I was resistant to meditation. I kept hearing how beneficial it was, and I eventually overcame my resistance. It was the single biggest reason for my mental U-turn out of cancer negativity. I highly recommend learning a simple practice and doing it daily. Qi gong is kind of like a walking meditation (I’m planning a series of posts on Qi gong upcoming).

I also feel that the power of music is underestimated. I worked on creating a playlist of uplifting and positive songs that I could listen to. When you’re down in the dumps, sometimes music can help flip your script. I ended up with a wide variety of genres that clicked with me. I used it to get my positive vibe up, especially while cooking (didn’t you know food tastes better if you dance while it’s cooked?) Although, during the transplant, I mostly listened to my favorite pianists, Ludovico Einaudi and Helen Jane Long (Ludovico’s songs Ascent Day 1 and Nuvole Bianche are epic).

So these were my pre transplant regiment. During transplant, I once more wanted to keep up as much as I could on the nutrition. This was the building blocks of my new cells. I wanted to create good tissue and give my cells what they need to thrive. I was really excited when they said I could drink fresh vegetable juice, I drank it daily.

Besides the vegetable juice, it was also imperative for me to keep up on my fluids. Drinking was also a challenge. I drank water, coconut water and bubbly mineral water for the minerals and it helped with the nausea. I also asked for if fluids every day whether I needed them or not. Certainly high dose chemo is highly toxic itself and the fallout from it is a lot of dead cells. I wanted to flush things out as much as possible once the chemo was done doing its job. You have to protect your kidneys!

(A juice man created by my daughter 👉🏻)

Having my GI tract destroyed was a challenge for wanting to eat anything. I mostly ate my normal breakfast just in a smaller portion. Mung beans and vegetables for lunch and whatever I could get down for dinner (by dinner I usually wasn’t interested in eating at all). I do feel like having the wholesome diet helped a lot with not having extreme nausea and keeping my blood and electrolytes up.

It was also important for me to keep moving every day and get exercise through it. After breakfast, I would do my Qi gong exercises. I would then take a rest and then no matter how tired I was, I’d scrape myself off the sofa and go walking in the park every day. I do believe movement is life and if you want to keep living, keep moving.

I’ve gone back to my pre transplant regiment except for the sauna, which I’m not allowed to do until day +60. I have random pain in some of my tissue, which can be a sign of toxicity. I’m looking forward to some good sweating. My GI tract went back to some semblance of “normal” at around day +27. The doctors and nurses keep telling me how good my blood numbers are. I feel like I got through it easier than some people, from reading their stories.

This is my strategy, I guess we will see where the chips end up. If the myeloma is going to thrive through all this, it’s going to have to do it eating broccoli.

Blog, How To

How To Stop Freaking Out Or De-Stress

By Breathing of course.

Have you ever given awareness or paid attention to your breathing? Sometimes when I’m watching TV in the evening, I’ll randomly do a check in, to see how my breathing is going. Sometimes, I’m surprised to find that I’m breathing rather shallow. Especially, I notice it when I’m watching sports and I want my team to win. I’m stressing out over something silly, like a sports game, that actually doesn’t matter at all.

Working, driving, family, friends, money, pets, a chronic condition, waiting on test results, any number of things or life in general, can be stressful!

I’ll let you in on a secret of mine.

I’m afraid of needles, especially blood tests. I laugh at the irony of it all the time. Go figure, I would get a blood cancer.

For months, in the last number of years, I have had to go in for weekly blood tests. I could feel myself wind up as the days went by, to see the vampires, got closer and closer. Feeling that heavy pit in my stomach. Sitting there, in the chair, as they put that rubber band on your arm. Waiting as they are about to stick in the needle. Darn! They missed the vein, now they have to dig around for it or stick me again (I actually have easy veins too). Sometimes, I break out in a sweat, heart pounding. Shaking, when it’s all over.

Well, that doesn’t sound like a good state to be in.

I was just put into fight or flight mode, and I need to be in rest and repair mode as much as possible. A person doesn’t think clearly when they are in fight or flight state.

Breathing is the best way to get back into rest and repair mode and stop stressing or freaking out. It doesn’t matter the reason you are freaking out for these techniques to work. Sometimes just giving awareness to your breathing can be helpful. Just recognize and correct the situation.

I would like to give credit first, mainly because I don’t think it’s said enough, to India, to yoga, to preparing to meditate and meditation. Not to our western version of yoga, the real deal thing developed in India, where these breathing techniques come from. I will always be grateful for the life altering practices that I learned there.

Technique 1:

Alternative Nostril Breathing. This is my personal go to. I do it when I feel stressed and need to calm down and reset.

Begin by holding your right nostril closed and breathe in through your left.

Next, close your left nostril and breathe out through your right nostril.

Keep holding your left nostril closed and breathe in through your right nostril.

Then close your right nostril and breathe out through your left.

This completes one set. Try and count to yourself the same number of counts breathing in and keep it the same number breathing out. Whatever number is comfortable for you. (I’m pretty sure I missed my calling as a nose model, what do you think? 🤪)

I also do a version of this, for at least 10 minutes, every night before I go to sleep. This version must be done when you are calm and not stressed. It’s the same except, you hold your breath for a count of 1 after you inhale both times.

Technique 2:

Sigh Breathing. I really like this one too. I do enjoy a good sigh.

  • Sit up straight.
  • Take a deep, slow breath in through your nose, filling your lungs to full capacity.
  • Hold your breath for 3-5 seconds.
  • Release your breath through your mouth with a sigh (or a good groan 😜).
  • Repeat until you feel better.

Technique 3:

4-7-8 Breathing. This one is amazingly good and quick for snapping you back into instant clarity. I think maybe it has to do with the lack of oxygen coming in at times. Again, alternative nostril breathing is my number one choice, but this one is really helpful in certain situations.

  • Start by exhaling completely.
  • Breathe in for a count of 4.
  • Then hold your breath for a count of 7.
  • Exhale for a count of 8.
  • Repeat. I find that it usually only takes 5 times or so to be re-centered.

A quick note on counting. Make sure you are counting the same way, with the same timing. I can count to 8 in the same time as 4, but that defeats the purpose of doing these breathing exercises. 8 should be twice as long as 4!

Technique 4:

Square Breathing. I don’t use this one much, but I know people who really like it.

  • For this one, the number count doesn’t matter, do what works for you, but the number has to remain the same (i.e. a count of 4 or 5).
  • Start by exhaling completely.
  • Breathe in through your nose for the count of 4.
  • Hold for the count of 4.
  • Exhale through your mouth for the count of 4.
  • Hold again for the count of 4.
  • Repeat.

Technique 5:

Straw Breathing. This is a fantastic one for kids.

  • Breathe a full breath in through your nose.
  • Puff up your cheeks with air and blow out slowly through your mouth like you had a straw in your mouth.
  • Repeat.

For me personally, I can get through my bloods tests and IV’s fine now (and most other things), without freaking out. I’m still very much a work in progress.

I was trying to think of a number 2 for de-stressing besides breathing. Breathing is number one on my list because it’s so effective, it doesn’t cost you anything, and you can do it anytime and anywhere. I would say that exercise would be number 2. But it’s funny though, if you’re exercising, give awareness to your breath, and you’ll notice you breathe very deeply and rhythmically, usually the same count in as out. So in the end, is it breathing again?

Breathing is so amazingly simple and it is so amazingly effective. This should give you a number of tools to help you get through life or de-stress. I hope you find one that you like.

Breathing will help you regain yourself when you lose yourself. But if you want to keep a level head and not lose yourself to begin with, meditate daily, but that’s a whole other topic…

Kabaam!