Hello all. Here is the most recent snap shot of my blood. I view it, and it turns out my doctor also views it as a mixed bag. My m-band disappeared last month, which I was excited about. At that point, it had been six months since my car-t, and I was excited that my engineered cells were still alive and doing their job. I still had a faint showing of IGG lambda on the Immunofixation Electrophoresis test, which hinted that there is still myeloma in me.
March’s labs continued to show the faint hint of myeloma in my blood, even though my m band had zeroed out. So that was not the best news. I had a meeting with my specialist shortly after the blood test results. He was saying that most people would have zeroed out completely by now if they were going too. Having a smidge of protein on the immunofixation electrophoresis at this point is concerning for him. He did concede that there have been cases of people taking longer than 7 months post car-t (which is where I’m now) to have normal blood.
We are going to do a bone marrow biopsy and do some cancer counting on a cellular level to get a better idea of what’s going on.
So I have mixed feelings about it all. The cancer is under control but likely is still there. The doctor is thinking about recommending bi-specifics shortly (pending bmb results) to try and put a boot on the cancer’s throat.
I’m trying not to jump to conclusions prematurely, since there is prior data saying that car-ts can still being doing their job, just slowly (?). It’s been nice not being on any treatment though, other than antibodies. So the thought of having to go back on something is not a welcome thought.
Hurmph…. The life of a person who has been touched by cancer…
Reaching 5 years was one of my goals. Recent data came out for 5 years survival rate for myeloma. That number was 59%. Meaning out of 100 people, only 59 are still alive 5 years later.
That percentage was less 5 years ago, especially for people with my myeloma genetics (14:16).
The reason why this one is a bit more emotional is that I remember very specifically hearing the doctor tell me 5 years ago,
“You have 2 years left to live”.
I remember thinking “okaaayyyy…..”
Fortunately, shortly after, I started learning about cancer and learned that I wasn’t powerless to deal with it. My life was not in the hands of a stranger (the oncologist I was assigned to). There were things that I could do to change the direction of my life.
I have no doubt in my mind, that if I continued eating a standard American diet (SAD), I would be dead by now. I believe, eating a whole food diet has helped save my life up to this point.
I still have cancer. But I’m still here, despite what I was told.
Up to now, I have survived cancer.
On to the next goal. I wonder what the 10-year survival rate is?
Looks like I haven’t written anything for awhile. For no particular reason; I guess I just haven’t felt inspired. Hmm…. I wonder what has happened recently in my myeloma world.
I had a bone marrow biopsy (maybe in January?) to check my MRD status. I went up to 27 myeloma cells in a million. That was from about 1 in a million. So that was a bummer to see. MRD is pretty cutting edge. Nothing showed up on my blood tests, although the following round of blood tests showed my m-band moved to “detectable but not quantifiable”. BLAH, it would have been nice to hit MRD zero and stay there.
My oncologist didn’t want to make any changes based on MRD as most oncologist would follow. The myeloma specialist then spoke to the oncologist and then had a meeting with me to talk things over. He said that the numbers were not trending in the right direction, and what was the point of waiting until things significantly elevated. The specialist said he went through the list of drugs and wanted to add in a drug that “wasn’t going to do me harm”. He recommended adding back in Dara to punch the numbers back down.
I was on Dara prior to transplant, but Stanford stopped it because it was not working fast enough. Since it didn’t seem to give me any problems, I agreed to go back on it. If he was recommending something like cytoxan, I would have said no.
Well, as it turns out, side effects can change post transplant. I had my first dose of Dara with carfilzomib and it was rough. I turned into a 90-year old, with super fatigue. My skin on my torso also went hypersensitive and wearing a shirt was unpleasant. Too bad we were still in winter ❄️. That lasted for about a week. I had another round two weeks after the first, and the same thing happened again. The oncologist was baffled. We ran some blood tests, but nothing showed up. I’ve noticed that if something is out of the ordinary and not listed on a clinical trial, the oncologist is left bumbling his bottom lip and saying, “Good luck with that”.
Fortunately for me, by the third dose, my body was getting used to the drug and the symptoms significantly lessened. I didn’t have any of those symptoms by the fourth dose. So I’m back to being left with the few days of being miserable from the carfilzomib side effects. Maybe the cancer gods will show me some favor and things will get good enough to eventually drop the carfilzomib and just stay on the Dara.
But then again, at this point, I’m pretty sure the cancer gods don’t like me very much 😜. But then again again, they just updated all the five year cancer survival rates, and myeloma is now 59%. I’m going to hit 5 years soon. Not that I attribute that to the cancer gods, I’ll take the credit with my efforts.
I guess the other thing physically that happened was that, I developed a frozen shoulder. Possibly from the chemo, they aren’t actually sure what causes them. It’s quite bizarre. I can’t raise my right hand or arm above shoulder height or move it in an outward direction. I guess the tissue surrounding the “ball” of your arm, that goes into your socket, just seizes up. It can take 8 months to 2 years to “unfreeze”. Fortunately, it looks like I’m going through the stages at the faster rate. I’m sure the infrared sauna and turmeric are helping. Too bad my muscles didn’t freeze in a better spot 💪🏼. Imagine having your six pack be frozen and being ripped for 2 years.
Let’s see, I guess I have some blood numbers to share, here you go.
My medical provider made it a pain for me to transfer over my data, so that’s why I don’t post much about it (plus, I don’t have blood run much these days). Because of my weird side effects from the Dara, they did run a whole metabolic panel. My red blood cell numbers are still low. From the metabolic panel, they ran iron.
As you can see, my iron is quite well, from all those goji berries and beets. So my poor red blood cells are just quite beat up from the chemo. I thought that was interesting to see.
Well, I can tell your attention span is beginning to wane by this part of the post so I’ll be quick with the rest.
I made it to a succulent nursery, “Succulent Gardens”, down by Monterey, that I always wanted to go to. That was pretty awesome to visit. I’m a huge succulent fan, as you may have noticed from the pictures on my website. They supply plants to a lot of the other nurseries in California, so I was cool to visit the source. Here are some pictures.
I took a mushroom propagating class at a local collage. I sort of knew how to grow mushrooms from books and the internet, but I wanted some hands on training. So I know how to do that now. I have mushrooms growing inside the kitchen cupboards now. Hopefully at some point I’ll have a bigger space to really get into it.
Preparing mushroom growing media.
Finally, spring has sprung. Here are my irises that I planted last year. They had a year to grow and be undisturbed, so they are happy. Yukon likes to eat the grass around the pot.
It is test and doctor visit time, post transplant, for me. I had my meeting with my new myeloma specialist today. My old one left to go work for a drug company, so I had to get a new one, which was a bit of a challenge to get, surprisingly.
In my post transplant meetings with Stanford, the doctor kept repeatedly recommending I go on Revlimid for maintenance. In all my meetings with that doctor, I always had the feeling she would rather be off working on her projects, rather than working with patients. “Revlimid is what is normally done post transplant.” Her recommendation of revlimid, showed me she didn’t actually take the time to read my file.
To be fair, she is a transplant doctor and not an oncologist or myeloma doctor, but still, it would have been nice for a little effort on her part.
I finally had to say, “My case is not the typical myeloma case. I’m four years into myeloma and I’m just doing a transplant now. I’m already refractory to revlimid.”
“Oh really!?” She replied, looking flustered, rapidly clicking on her computer, and started trying to recover. “Let me review your case with one of my colleagues and I’ll get back to you.”
I tell you, it’s hard enough dealing with cancer without trying to manage your doctors!
Hence, my reason for paying out of pocket for a myeloma specialist at a different medical institution. I’m really glad I did. This is only my second meeting with a specialist, a year apart, and I can tell their myeloma knowledge is significantly better than my other doctors.
This new specialist told me almost right off the bat, that he is the leader in MRD (minimal residual disease) research. A mrd test is the best test you can have done for blood cancers, looking for remaining cancer cells. I’ve been pestering my regular oncologist for this test and he finally ran it with my last bone marrow sample. I’ve been waiting and waiting for the result, and I guess the specialist had it.
3 myeloma cells in 2,600,000 normal cells. My goal was zero detectable cells (MRD negative or MRD zero), I might as well swing for the fences. Second best is 1 in 1,000,000. I almost hit 1 in a million, just missed the mark. Anyhow, he was quite pleased with the numbers. His goal is to get me to MRD zero.
Although, I was thinking about the MRD test. It is only a sample of the marrow from a specific section of your bone where they pull the marrow from. So you can have different values at different spots in your bones. MRD positive in your left hip, MRD negative in your right. So I guess the MRD result is essentially flawed from the beginning. But I suppose it gives the best idea of what’s generally going on, since blood tests aren’t this sensitive.
I was thinking of the analogy of a city. If I had a city with a population of 2.6 million, and three of those people were crappy people, I would be doing pretty well. My city used to have a lot more crappy people in it, so I’m glad they are gone, but I still have work to do.
My regular oncologist recommended using carfilzomib as maintenance. I was on it prior to transplant, so that makes sense to me. The specialist recommended a higher dose, saying what was recommended wasn’t going to get it done. He also added cytoxan pills, I was also on that prior to transplant, which I’m not too excited about. It’s not an intelligent drug, and it just kills everything. I guess it’s all the lesser of two evils, maintenance versus active myeloma.
I think I’m going to be a bit more beat up from this maintenance than I was originally thinking, which is a bit of a bummer for me. Hopefully we can lessen the drugs over time….
Leading up to my stem cell transplant, I’ve had a few people ask me if I’m scared or afraid.
Having cancer, it’s a question that I get asked frequently at times.
For those who aren’t familiar with the transplant procedure, a person gets dosed with high dose chemotherapy, that kills all of your bone marrow. All of your blood comes from your marrow, red blood cells, white blood cells and platelets. Obviously, without those cells, you die (and people do from the procedure). A couple of days after the chemo, they infuse your own stem cells back into you and after a few weeks they engraft and your body starts producing blood again.
When I was first diagnosed, I definitely had fear go through me. With death looming over me and all that uncertainty, who wouldn’t be afraid. I went over that a bit in my post “The Elephant In The Room”.
Fortunately, a plan of action was formed and I learned a few weeks after my diagnosis, that I wasn’t powerless against cancer. There were things I could do myself that would increase my odds. I started transmitting my fear, although it still took time to work out. I had to face my fears otherwise it was going to drive me crazy.
Let me tell you, being afraid is EXHAUSTING.I just can’t do it anymore. So the answer to the opening question is “no”. I’ve more or less made my peace with death and once I got passed that, there isn’t a lot to be afraid of.
Being scared all the time, I don’t know how people can do it.
Fear is meant as a temporary mechanism to keep you alive. After a certain point, people let fear consume them, and it stops you from living.
Of course, the world just went through a worldwide scare with covid. I know people whose whole lives turned upside down with fear from covid. It was really amazing to witness. People wouldn’t leave their homes for anything. Spraying all their grocery’s with bleach. Avoiding all human contact.
I couldn’t help thinking, “if you’re terrified of covid, try having cancer”. I’m not belittling people’s reactions. Everyone is at a different point in their lives, being able to handle different levels of difficulty. It was just a bit odd for me to watch from a perspective of someone who has cancer. Having myeloma is like being hospitalized for Covid, waiting to see if it’s going to overwhelm your lungs or not.
Worrying about something is like paying interest on a debt you don’t even know you owe.
Mark Twain
I must say that I do find that I do have to remind myself from time to time, to not worry or be fearful. Fear is very good at creeping into the cracks in your mind. It plants little seeds that will grow into bigger things that can be very hard to get rid of.
Cancer test anxiety! What if the cancer is coming back? What if we can’t stop the cancer? Is that pain just a pain or is it cancer? What if, what if? It can go on forever, which is why I find it exhausting. If the answer was yes, to the cancer coming back or being unable to stop it, would worrying about it change anything?
Worrying about things will not change a single thing, so why spend energy doing it?
If you stop to think about it, fear pretty much always has its root in death.
If you are afraid of spiders, they are going to crawl on you and bite you and you’ll die.
If you are afraid of heights, you are going to fall off and die.
If you are afraid of the dark, something you can’t see is going to get you and you die.
If you are afraid of Covid, you’ll catch it and die.
If you are afraid of clowns, umm I’m not sure about that one, but it probably leads to death (🤔 they are creepy and get you?).
If you have cancer, you are going to die.
If we had an amazing perfect life, living in a bubble and nothing bad ever happened to us, we would still die. Death is part of life. Fear is part of life. Being paralyzed by fear is the problem. If I’m going to die from old age or cancer (or from clowns 😜), wouldn’t it be more useful, instead of being fearful, recognize it, overcome it and make the most of each day? Make a positive change in my little section of the world. Affect what I can affect. Wouldn’t you want to do the same?
You are either in control of your mind or your mind is in control of you. I prefer to be in control and not have fear dictate my life. If your mind is in control of you, then you have to work and train your mind. And believe me, it is work and it’s ongoing. No one is born with a perfect mind. It has to be developed and strengthened. Ironically, having adversity and overcoming adversity is one of the best ways to strengthen your mind.
When I was about 8, I had a little stuff animal T-Rex. It was only about 10 inches high. I really loved that little guy. One night I was in bed and I wished really hard that the T-Rex would come to life. I was pretty sure my wish would come true. I was lying there, thinking how cool it would be to have a pet T-Rex, and then it dawned on me, what if (there’s that “what if” again) it came alive while I was sleeping and started eating me (and I died)??? I quickly threw it out of my bed, across the room. I thought, “I’ll just see the alive T-Rex in the morning”. My mind had just created the impossible, and it was terrifying.
“Fear keeps us focused on the past or worried about the future. If we can acknowledge our fear, we can realize that right now we are okay. Right now, today, we are still alive, and our bodies are working marvelously. Our eyes can still see the beautiful sky. Our ears can still hear the voices of our loved ones.”
–Thich Nhat Hanh
I was trying to come up with the opposite of fear. Would it be bravery? That seems logical but it doesn’t quite seem to fit. A better fit in my mind would be, if you’re not afraid, you probably have peace or tranquility.
So how do you obtain inner peace or tranquility? Firstly, I would say it’s not something people can have all the time. It comes and it goes for most of us. After all, we are all human and have human reactions. You have to keep working at it, and do your best.
Some people obtain some peace through religion, prayer or being in a holy place. If you don’t believe in any of that (or it doesn’t work for you), try to spend time in nature, such at a forest or beach. In such places, you can face/talk about your fears, accept them and maybe find some contentment.
I like to spend time with giant redwood trees. When you are sitting next to a being that is 2000 years old and will out live everyone on the planet today, it can put life into some perspective. Connecting with nature energy heals your heart and mind.
Breathingtechniques can knock out fear quite quickly for immediate or unexpected fears. It helps rein in control the mind. Meditation helps you stay in control of your mind all (or more of) the time, so fear doesn’t take hold.
Practice forgiveness. You can’t have peace within yourself if you are carrying around the bitter baggage of the past. True forgiveness is a tough one for people. “I have forgiven you”. “Then why do you keep bringing it up monthly, yearly, every 5 years?”. If you can let go of grudges, then it’s easier to let go of fear.
You can practice gratitude. If you are thinking about things you are grateful for, and grateful for things that are going well in your life, you spend less time on fear. Gratitude keeps our mind in the present, whereas fear keeps our mind in the past or future.
Your mind can be either a strength or it can be a weakness. It takes effort on your part to strengthen and have control of your mind. I think it’s worth the investment of our time to do so, after all, think of the time and energy we currently invest in our fears.
Dale Carnegie says, “You can conquer almost any fear if you will only make up your mind to do so. For remember, fear doesn’t exist anywhere except in the mind.”
So snuggle with your stuffed dinosaurs, for they won’t bite. High five the next clown you see for trying to make you laugh. And maybe dying is really just the great next adventure.
A number of my labs look like this. My poor cells after getting hit with high dose chemo. I hope the myeloma cells are following a similar trajectory 😅…..
Here is my latest set. Not a whole lot changed. My light chains are now both low. I guess the drugs are really hammering them. M-band is too low to quantify. Some of the CBC’s are up and the others a down a bit.
I had another bone marrow biopsy as well. Results showed the myeloma is under 1%. Previous test showed 20%, so that was a huge drop in 3 months. They ran another fish genetics test as well for some reason. That came back normal, I do have the 1q gain and the 14:16 myeloma genetics, that show up when there is enough myeloma.
Name Standard range
12/9/22
1/6/23
2/3/23
KAPP/LAMB FR 0.26 – 1.65
0.29
0.39
0.73
KAPPA LIGHT CHAIN FREE 3.30 – 19.40 mg/L
3.55
2.25
2.14
LAMBDA LIGHT CHAIN FREE, SERPL 5.71 – 26.30 mg/L
12.07
5.82
2.92
Component
Your value
Standard range
Creatinine
0.72 mg/dL
<=1.34 mg/dL
Estimated Glomerular Filtration Rate
>60 mL/min/1.73 m2
=60 mL/min/1.73 m2
Component
Your value
Standard range
Bilirubin, total
1.0 mg/dL
0.2 – 1.2 mg/dL
Component
Your value
Standard range
ALT
16 U/L
0 to 47 U/L0 – 47 U/L
Name Standard range
12/9/22
1/6/23
2/3/23
HCT 39.0 – 51.0 %
35.8
34.9
35.1
HGB 13.0 – 17.0 g/dL
13.2
12.4
12.4
MCV 80 – 100 fL
89
94
97
NRBC <=0 /100WC
0
0
0
PLT 140 – 400 K/uL
177
177
184
RBC’S 4.10 – 5.70 M/uL
4.02
3.72
3.63
RDW, RBC 12.0 – 16.5 %
14.9
15.2
13.8
WBC 3.7 – 11.1 K/uL
4.4
4.7
5.5
Name Standard range
12/9/22
1/6/23
2/3/23
BASOS % AUTO %
0
0
0
BASOS ABS AUTO 0.0 – 0.1 K/uL
0.0
0.0
0.0
EOS % AUTO %
1
2
4
EOS ABS AUTO 0.0 – 0.4 K/uL
0.0
0.1
0.2
IMMAT GRANS ABS AUTO 0.0 – 0.1 K/uL
0.0
0.0
0.0
IMMAT GRANULO % AUTO %
0
0
0
LYMPHS % AUTO %
25
28
28
LYMPHS ABS AUTO 0.9 – 3.2 K/uL
1.1
1.3
1.5
MONOS % AUTO %
14
12
12
MONOS ABS AUTO 0.3 – 0.9 K/uL
0.6
0.6
0.6
NEUTROPHILS % AUTO %
61
58
56
NEUTROPHILS ABS AUTO 1.8 – 7.9 K/uL
2.7
2.8
3.1
Name Standard range
12/9/22
1/6/23
2/3/23
2/3/23
ALB 3.8 – 5.0 g/dL
4.3
4.2
4.5
ALPHA 1 GLOB EP 0.2 – 0.4 g/dL
0.3
0.3
0.3
ALPHA 2 GLOB EP 0.5 – 1.0 g/dL
0.4
0.4
0.5
BETA GLOB EP 0.6 – 1.2 g/dL
0.6
0.6
0.6
GAMMA GLOB EP 0.7 – 1.8 g/dL
0.6
0.4
0.4
TP 6.0 – 7.7 g/dL
6.2
6.2
Name Standard range
12/9/22
1/6/23
2/3/23
M-BAND-1 <=0.0 g/dL
0.4
SEE ABN
SEE ABN
SPEP INTERPRETATION
SEE ABN
SEE ABN
SEE ABN
RESULT Normal FISH Result
1q (CKS1B) Gain: not detected t(4;14) (IGH-FGFR3) Fusion: not detected 9p (JAK2) Gain: not detected 11q (CCND1) Gain: not detected t(11;14) (IGH-CCND1) Fusion: not detected t(14;16) (IGH-MAF) Fusion: not detected t(14;20) (IGH-MAFB) Fusion: not detected 17p (TP53) Deletion: not detected
My Labs are finally back. It took forever for my M Band to come back. I was starting to think they lost the vial of blood. Made it to M-Band detected; not quantifiable, which is cool. For non myeloma people, that means it’s still there but below what they can measure, which is good, still aiming for Zero though.
My blood seems a bit beat up, Myeloma and all. Light chains are almost low now. Protein is punched down. First time in a while my hemoglobin is down, I’m not too concerned though. I remember one time I had a cbc, the lab messed up my platelets and I had to go back in the afternoon for another blood draw. Having had two cbc in one day, I saw how much they can vary, even from the same day. The morning hematocrit and hemoglobin were normal and the afternoon was low. Things are just a snapshot from when the Vampires struck.
Normal blood numbers look good. Cancer numbers look BLAH! I feel like my cancer cells see the cancer drugs and are flipping the bird and going the other direction.
One of things that is a challenge for me with myeloma is that it is generally an older person cancer and most of the data out there is based on someone much older than I am. The median age for myeloma is 66-70. Only recently has it been showing up in younger people.
I’ll confess that I’m a bit of a data/numbers/stats person. How do I know if a certain set of data points are the way they are because it’s just myeloma or it’s because it’s off of someone who’s 70? The answer is, I don’t.
Most of the oncologists I’ve talked to like to say, “You’re young, you can take it”. Umm gee thanks, I get extra drug abuse because I’m young and can take it???? It’s a fine line between dying of myeloma and dying from drugs meant to kill myeloma. I like to keep that in mind.
The 5 year survival rate for myeloma is about 40%. Obviously, like most people, I want to be on the side of the 40% that is still alive. I want to be a myeloma person who is still alive in 10 years, 15 years, 25 years.
What’s my strategy to achieve that? A strategy that I believe can help a person who is any age.
By doing what is good for my body, down to the cellular level and bad for cancer. It’s funny how things that are really good for us are also good at getting rid of cancer cells (and other chronic illnesses, I might add).
The biggest foundational piece to health is diet. Without a healthy diet, as the first building block, it’s hard to have success with anything else. Everything builds off of food and drink. It’s easy for me to point to having a poor diet as part of the reason I’m in this mess to begin with.
Feed your body nutritional food that is GOOD for you and don’t feed yourself food that is good for cancer growth. It’s just common sense if you think about it.
NF-KB is the primary pathway for growth in Myeloma, regulating inflammation and immune responses. Doesn’t it just make good practical sense to eat an anti inflammatory diet as to not give myeloma what it needs to grow. We know sugar, dairy, highly processed foods, meat and alcohol are inflammatory for the body and feed cancer cells.
1. I choose an anti inflammatory diet that is plant based whole food which is anti cancer. Food that is full of life/prana/qi and not something that expires 6 months from now.
Some people call a whole food diet, full of vegetables and fruits, legumes, healthy grains and healthy fats extreme. If you stop and think about it, I eat the same way as my great grandparents did and every generation before them. Does that sound extreme? If you had a time machine and went back in time to the 1800’s and asked someone if they have an extreme diet, they would look at you like you were crazy. In fact, I eat better then my great grandparents, because I have access to so much more variety. Only ignorance holds people back.
2. Next, I make sure that I drink purified water. You only have to glance at the news to read about stories of toxic water in whole towns (Flint MI, South Shore KY etc.) that is undrinkable. The local governments come out and say “my bad”, leaving you to deal with the fallout. I use a RO water filter currently. We have pretty good water here in California, but when we change the filters, they are really disgusting. Filter your water!
3. There are basically two thoughts of dealing with cancer, killing it with chemotherapy, surgery or radiation or to block it metabolically (starve it). Metabolically makes the most sense to me, since cancer cells are just your cells gone wrong and I can’t kill my blood without killing myself effectively. Truthfully, I’ve been hammering away at this metabolically and I haven’t been able to get the results I want. The best I got the oncologist to say is “Your myeloma isn’t behaving as expected. You are a high risk patient who is behaving like a standard risk patient”.
I’m currently mixing both worlds of chemo and metabolic blocking. I do take supplements such as Curcumin, Reishi, D3/K2 among other things that inhibit myeloma growth (they inhibit other cancers as well).
4. “Sitting is the new smoking”, they say. Move your body! I stay active everyday, walking, hiking, gardening, bike riding and Qigong. Some say cancer is cause by stagnation of the body, in areas that lack oxygen. Exercise has lots of benefits such as increased oxygen, blood flow (looking at you revlimid non-blood clots), increased heart rate, plus it can get you out of your own head!
5. Speaking of heads, I’m pretty sure I suffered some sort of ptsd with the cancer diagnosis. I took me a couple of years working through stuff to overcome it. It was a big growth experience for me. Getting out raw emotions, breathing techniques and meditation is what worked for me. I still keep up with pranayama and meditation daily for upkeep.
I have had plenty of seemingly one sided conversations with God. One of the things that I’ve gotten back is, an overwhelming sense that I’m meant to go through this (for reasons that are still a mystery to me), so that is very reassuring for me.
6. Detoxing. I’ve spent a significant amount of time working on detoxing my body (and mind). I done detoxing methods from naturopath methods and I’ve gone to India twice for a major full body detox called Panchakarma, which is a month long process each time. I’ve definitely had some raunchy stuff come out of me. Of course we live in a toxic world and I’m continually having toxins come in no matter how much I avoid it. I use diet and infrared sauna to keep on moving things out that aren’t supposed to be there.
To sum up my strategy, I do what is good for me and bad for cancer. Using chemo when I need it (trying to stay away from it as much as possible). Keep moving and living. Hit the myeloma with certain supplements. Keep working on my head and remembering why I want to keep living.